About

Welcome!  The purpose of this blog is to provide information, hope and support to parents raising a child with apraxia.  

My son, Ryan, was diagnosed with verbal apraxia at 27 mos.  In my efforts to understand his condition, I immediately sought help from our Children’s Hospital speech pathology group, as well as our pediatrician.  Unfortunately, these typical sources weren’t able to give much in the way of information.  I was told “He has verbal apraxia.  He’ll need intensive speech therapy” but that was it. 

WHAT?  Surely there’s more.  Where’s the step-by-step program to fix it?  The medicine that cures it?  You just told me my son might not be able to talk – have a nice day?  Is this something we’ll conquer in a couple of months?   

My husband and I were given no perspective.  And my heart was broken.

So, I did what any other head-over-heels, in love Mother would do.  I spent every spare moment and every self-induced, sleepless night scouring the internet to learn more.  I quickly realized this was much bigger than just getting Ryan to talk. 

I also realized Ryan’s progress would be determined by his own hard work, his parent’s unwillingness to settle, and the kindness of strangers sharing their experience and knowledge.

Thanks to countless blogs, countless message boards, and one incredible SLP, we slowly discovered strategies that helped our precious boy.

So, it’s quite simple, really.  I felt I had to do the same.  I had to make Ryan’s story available so that perhaps, one sleepless night at 3:00 a.m., a parent might discover this blog and find hope, resources and confirmation that it’s going to be okay.

Join me as I recount our journey up to now, and record our future journey with apraxia as it happens.

6 Responses to About

  1. Kassie Ehler says:

    Hi there-
    I came across your blog as I sit here devastated and more worried for my daughter than I ever thought I could be. I would absolutely love to visit with you – would you mind sharing your e-mail address with me?

  2. Stephanie says:

    Hi,

    I am so happy to have found your blog! My 2 1/2 year old was recently diagnosed with severe verbal apraxia. He can only say mama, dada, ball, baby, bye bye, hi, cow, dog, eye, car, mine, down, yum, pees (please), bubble & Remy (our dog). It’s absolutely heartbreaking to watch him struggle so much to try and talk, he really wants to but just can’t form the sounds. He’s in Speech Therapy but I haven’t noticed any progress so far, so after reading about Fish oils I just ordered the NN ProEFA and am keeping my fingers crossed that it will help Oliver. I watched the videos of your little guy, and they gave me hope that someday Oliver may be able to talk like Ryan does now. Seriously, the progress your son has made is amazing!

    Thank you so much for your blog and generosity of sharing your story, it’s such a scary path to start to travel and it helps more than you can know reading about your journey.

    Stephanie
    P.S your little guy is adorable!

    • svraciu says:

      Hi Stephanie!

      So sorry I am just now getting back to you. All 3 of my children’s birthdays are in April and I finally am settling back in to life 🙂

      I’m so glad you found my blog. Ryan just turned 6 a few weeks ago, but I distinctly remember being in your shoes as if it was yesterday. I know Oliver will do just fine – especially since you’re on top of it this early in the game. I can’t say enough great things about PROMPT therapy and our experience with NutriiVeda, as well as the fish oils, but at the end of the day I believe it takes a really dedicated Mom like you to help Oliver reach his best potential.

      Please feel free to reach out at any time should you have any questions in your journey. It was only through the kindness of other parents that I made it through the tough early times and frustrating bumps along the way.

      Best of luck to you and Oliver!!

      Sharon

  3. Semoine Boyer says:

    Hello,

    Unsure if you are still maintaining your blog. I ran across your blog while researching PROMPT therapy for my 3 year old son. He was diagnosed with apraxia at 24 months (by way of mistakenly being diagnosed as autistic) and since then my husband and I dove head first into any information that we could get our hands on…to include natural supplements that may help with his apraxia and fine motor skills. Our son takes fish oil and will begin PROMPT therapy next week. After viewing your videos I am very interested in Nutriiveda but cannot seem to find where to purchase the product, or a distributor in the Annapolis/Baltimore area. Any suggestions?

    • svraciu says:

      Hi Semoine!

      I have such wonderful intentions of updating my blog, but life is so hectic (now have 3 kids!) that I just haven’t had an opportunity to sit back down and update. Ryan just turned 6 and is doing just incredible. He is in mainstream classes and NO ONE has a clue of what he’s been through in regards to progressing from nonverbal to “normal” in such a short amount of time. He hasn’t been in speech therapy in over a year and we even stopped using NV after a couple of years b/c we’d seen so much progress and he had gotten to such a great place.

      I’m so excited you found PROMPT therapy, it will truly make a real impact. However, as you can see from my blog, I am MOST passionate about NutriiVeda. I am connected with an organization, The Cherab Foundation, and their Founder/President, Lisa Geng. Lisa is the one who introduced me to NutriiVeda several years ago. I was so excited about the progress we saw with Ryan, that both Lisa and I became distributors. As you’ve found, there aren’t many places where you can purchase the ORIGINAL NutriiVeda formula, which is the only one we’d recommend. The company tried to revamp the formulation and all of us in the apraxia/special needs community saw regressions in our children. So, they agreed to continue to produce the original NV formulation but only those of us with the Cherab Group have access to sell it to others – as of now they don’t even actively market it, however I am hoping that changes soon. I used to have a website explaining all the details, but I don’t sell NV to make money – just to spread the word to families like you – so I stopped managing my site and just help people out if they reach out to me. Lisa, however, does have a site where you can read all about NV, how it works, what’s in it and most importantly personal testimonials from families like mine of their before/after.
      The site is http://www.pursuitofresearch.org and I would encourage you to read the following links while on the site:
      •Getting Started tab: http://pursuitofresearch.org/getting-started/ that gives a little history on what NV is, and some of the incredible gains the majority of kids have seen while on it. Definitely worth a read.
      •Featured NutriiVeda tab: This has several sub-tabs in it. I’d check them all out – ESPECIALLY the testimonials. I can vouch for many, many of these testimonials as they come from parents like me. I met A LOT of these parents on an online support group for apraxia and had been corresponding with them for over a year when we all decided to take the plunge and try NV. These are real parents sharing their experiences…they are not made up by a marketing team. I think our story is even on there too!

      If you choose to order, you can call me personally and I can easily help you place your order, and answer any questions you may have. You can email me personally (svraciu@hotmail.com) or call me (513-349-3077) and I’ll get you taken care of. If you choose to order from Lisa’s site, just include my name, Sharon Vraciu, in the “how did you hear about us” and I can personally help manage your order ongoing if you choose to try it.

      Best of luck and reach out if you ever need anything else!
      Sharon

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